Paediatric Support Day
A big thank you to Scigen for contributing towards our paediatric support day on Saturday 18th April 2009.
What a great day. 12 families attended with a combined total of 23 adults and 13 children attending.
This was an informal day which gave families the opportunity to meet and also gain some insight into their child’s condition through sharing and learning. Thank you must go to Father John Lyne of St. Kevin’s Parish Eastwood, who permitted the Foundation to use the hall which provided a kitchen for serving up lunch and also a secure area for the children to play. A HUGE thank you must go to parents Gregor and Jo along with their extended family who assisted in arranging the day.
The children appeared to be having a good time with Jo’s brother Andrew, while the adults listened to an informative session by Dr Paul Benitez- Agiurre, Endocrine Fellow, on Hydrocortisone treatment and sick day management.
Bin Moore, Anne Craighead and Tracey Jopling, Nurse Educators from the Children’s Hospital at Westmead set up a small workshop to give families the opportunity to practice injection techniques.
Connections were made and the feed-back was that the children enjoyed attending the day. The plan is to continue paediatric support gatherings in NSW approximately 3 times a year. As our paediatric membership grows we hope to support more families.
Tracey Jopling, Anne Craighead, Paul Benitez- Agiurre, Bin Moore
APF NSW Educational seminar 2008
The NSW Pituitary Awareness Seminar is hosted by the Garvan Institute on
alternate years and 2008 was such a year. The topics related to the inter-relationship between the Pituitary gland and issues of weight and mood, two issues which appeared to “strike a cord” with a number of members.
The presentation was broken into 2 sessions with 3 short inter-related topics followed by a question time, in each.
As is always the case, there were more questions than could be answered in the time allowed but the presenters carried on answering questions and clarifying details during morning tea and at the conclusion of the program.
The main thread of the topics indicated that it was almost impossible to determine whether the pituitary disorder caused the weight or mood issues or whether lifestyle issues which cause weight or mood problems affect the pituitary function. Whichever is the case, unfortunately those people suffering from pituitary disorders will have no “easy fix”, keeping as fit and active as possible with a healthy diet is essential to have the best quality of life.
Thank you to the staff at the Garvan Institute, particularly Professor Ken Ho who is an avid supporter of the Pituitary Foundation, for the professional and polished performance which he and his staff produced. It was a pleasure to co-ordinate the Seminar with Professor Ho’s Secretary Suzanne Emery and Nikki Alling, both of whom made what could have been a major task so easy.
APF NSW Educational seminar 2006
 
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APF NSW Educational seminar 2005
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APF NSW Educational seminar 2004
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2004 Seminar held at the Garvan Institute of Medical Research.
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APF NSW Educational seminar 2003
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Attendees enjoying lunch at the Prince of Wales Hospital.
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APF NSW Educational seminar 2002
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APF NSW Educational seminar 2001
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