Australia

 

Australian Addison’s Disease Association Inc
www.addisons.org.au

The Association seeks to educate the medical profession to have a higher awareness of Addison's disease and also make the general public aware of the disease.  Up to date information is supplied to people with Addison's disease and the Association provides a caring network to give support for people with this disease, which is a result of adrenal gland failure.

In particular, the Association hopes to share information relevant to sufferers of Addison's disease in and around Australia, and encourage mutual support through its growing network of State-based branches.  Phone:  (02) 6657 2571

 

The Australian Thyroid Foundation Ltd
www.thyroidfoundation.com.au

The ATF is an Australian wide organisation which supports and educates it's members and the general public on the importance of good thyroid health and thyroid disorders.

Services provided for members of The ATF include, Member's Meeting, Telephone and Email Support, Regular Newsletters, Information Days and educational material.  The ATF is a Not For Profit (Charity) Organisation.   Phone:  (02) 9890 6962

 

Thyroid Australia
www.thyroid.org.au

Thyroid Australia is a support organisation for people with thyroid conditions as well as their families and their friends.

Thyroid Australia is a voluntary organisation whose founding members have suffered or been affected by various thyroid conditions and who wish to help others in similar situations.  Phone:  (03) 9888 2588

 

Diabetes Australia
www.diabetesaustralia.com.au

View Don’t Ignore Diabetes Campaign
www.dontignorediabetes.com.au

Diabetes Australia is the national peak body for diabetes in Australia. The organisation’s ultimate vision is a healthy world free of diabetes. With this goal in mind, its purpose now is to minimise the impact of diabetes for people with diabetes, their carers, families, friends and supporters.

A customer help line provides personal and professional advice to help people better manage their diabetes needs as well as information about subsidised diabetes products listed on the National Diabetes Scheme.  Phone:  1300 136 588

 

Vision Australia
www.visionaustralia.org.au

Vision Australia Limited is the largest provider of services to people who are blind or vision impaired in Australia, assisting more than 38,000 children and adults to live the lives they choose.

Vision Australia works with people to enable them to experience life to its fullest. It offers a range of services that can be tailored to a person's level of vision and their individual needs.  Phone: 1300 847 466

 

Australasian Menopause Society
www.menopause.org.au

The aim of the Australasian Menopause Society is advancement of knowledge about the menopause.

The Australasian Menopause Society endeavours to bring people together, be they doctors, nurses, paramedical or community workers who feel they would like to participate in communication and scientific discussions for the advancement of knowledge about the menopause.

 

Impotence Australia 
www.impotenceaustralia.com.au   

Impotence Australia is a not-for-profit organisation that was set up to decrease the suffering of men with impotence and their partners by providing quality telephone counselling. In addition to telephone counselling, Impotence Australia provides information fact sheets on many sexual issues. Impotence Australia strives to develop and maintain relations with consumers and health professionals to improve treatments and care. Impotence Australia is an independent consumer organisation with no ties to any clinical services. 
Phone:  1800 800 614

 

Andrology Australia
www.andrologyaustralia.org

Andrology Australia aims to raise the awareness of male reproductive health conditions through community and professional education programs and provides information and resources on targeted areas of male reproductive health including androgen use and abuse, male infertility, erectile dysfunction, testicular cancer and prostate disease (including prostate cancer).   Phone:  1300 303 878
 

Brain Tumour Support Service,  Cancer Council Qld
www.qldcancer.com.au

The Brain Tumour Support Service provides support and information to people who have had a brain tumour, their family or friends, whether benign or malignant. Support is provided through regular meetings in Brisbane and information and education days involving health professionals working in the area of treatment, rehabilitation and support.

Information is provided about brain tumours, treatment, support agencies, and rehabilitation services. Newsletters are provided for state-wide support.  Phone:  131120

 

Carers Australia  
www.carersaustralia.com.au

Carers are usually family members who provide support to children or adults who have a disability, mental illness, chronic condition or who are frail aged. Carers can be parents, partners, brothers, sisters, friends or children. Some carers are eligible for government benefits while others are employed or have a private income.  Carers Australia is the national voice of carers. It also provides support services for carers around Australia. Phone:  1800 242 636
 

 

The Greater Metropolitan Clinical Taskforce Transition Care Program
www.health.nsw.gov.au/gmct/transition

The program was established in late 2002 to address the issues faced by young people who have a cronic illness or disability when they move from children’s to adult services.
The Transition Coordinators work closely with paediatric clinicians, their adult counterparts and young people to develop the best models of practice for Transition Care health services across metropolitan and rural NSW.  You can learn more about transition initiatives, read actual stories written by young people about their experiences during transition and much more.
Contact:   Lif O’Connor,  Transition Care Coordinator Tel:  (02) 95156382
Lif.oconnor@email.cs.nsw.gov.au

 

 

Self Help Organisations

There are organizations in most states which provide information, resources and referral to self help and support groups.  Some of these organisations have very useful directories and conduct management courses for those living with chronic conditions.

QLD– Self Help Queensland Inc (SHQ)   Phone:  (07) 3344 6919 
www.selfhelpqld.org.au

ACT – SHOUT Inc.    Phone:  (02) 6290 1984 
www.shout.org.au

WA – Western Institute of Self Help Inc. (WISH)   Phone:  1800 195 575
www.wish.org.au

VIC – Collective of Self Help Groups (COSHG)   Phone:  (03) 9349 2301
www.coshg.org.au



Doctors4U® 
www.doctors-4u.com
Medical Directories with listings of Doctors, Chemists and Hospitals in every
capital City of Australia, as well as Cairns, the Gold Coast and Launceston.


International

 

The Pituitary Foundation (UK)
www.pituitary.org.uk                               

The Pituitary Foundation is a national patient support, information and advocacy organisation for pituitary patients, their families, friends and carers, which operates throughout the UK and Republic of Ireland. It is estimated that there are between 40,000 and 70,000 pituitary patients in the UK. The Foundation was launched in November 1994 following research amongst patients and clinicians regarding the need for such an organisation. Charitable status followed in September 1996.

 

Pituitary Network Association (USA)
www.pituitary.com

The Pituitary Network Association (PNA) is an international non-profit organization for patients with pituitary tumors and disorders, their families, loved ones, and the physicians and health care providers who treat them.

PNA was founded in 1992 by a group of acromegalic patients in order to communicate and share their experiences and concerns. PNA has rapidly grown to become the world's largest and fastest growing patient advocacy organization devoted to the treatment and cure of pituitary disorders.

 

The Diabetes Insipidus Foundation Inc. (USA)
www.diabetesinsipidus.org                      

The mission of The Diabetes Insipidus Foundation, Inc. is improved treatment, and ultimately the prevention and cure of all forms of diabetes insipidus through research.

They promote a greater public awareness and understanding of the disease and will serve patients and their families with informational material and through the quarterly publication of Endless Water.

The Foundation promotes Diabetes Insipidus as "A Different Diabetes" so that people will know that there is another diabetes.

 

The Mayo Clinic (USA) 
www.mayoclinic.com

This website provides information and tools to help you manage a chronic disease or condition.  Type “pituitary” in the search area.   Updated: July 2006